Emily Urquhart {Pdf epub} Beyond the Pale

FREE READ Beyond the Pale

Drew the awestruck hospital staff to her sideA journalist and folklore scholar accustomed to processing the world through other people's stories Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide What she finds on her journey vacillates between beauty and darkness She discovers that Noah's birth story is believed to be the first record of a baby born with albinism and that the Kuna people in Panama revere members of their society with albinism seeing them as defenders of the moon in the night sky She attends a gathering of people with albinism in St Louis and interviews geneticists social scientists novelists and folklorists in Canada England and the US But when she uncovers information about grue. A wonderful read exploring the many cultural beliefs and understandings surrounding albinism This is a non fiction book focusing on a subject in which Emily Uruhart has poured her heart and soul Having given birth to her daughter Sadie Emily uickly discovered there was something that set her daughter apart from the rest she had albinism Being a passionate folklorist Emily took it upon herself to discover everything there is to know about albinism from all over the planetWhat I loved about this book was the unfaltering determination from Emily to unearth the secrets of her family so that she could one day share them with Sadie You see Emily and her husband come to terms with the fact that Sadie will always be impaired in some way or another but they combat that with pure courageousness and open minds It was a truly eye opening read and I would highly recommend to all I had never read anything to do with albinism before and this one definitely taught me a lot

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Beyond the Pale

Some attacks on people with albinism in Tanzania rooted in witchcraft she feels compelled to travel to East Africa her sun shy toddler in tow in an effort to understand these human rights violations Upon her return to Canada she discovers a family photograph from the past that might illuminate her daughter’s present While navigating new territory as a first time parent of a child with a disability Emily embarks on a three year journey across North America and Africa to discover how we explain human differences not through scientific facts or statistics but through a system of cultural beliefs Part parenting memoir part cultural critiue and part travelogue Beyond the Pale as the title suggests takes the reader into dark and unknown territory in the search for enlightenme. Given that I am Canadian it is ironic that I learned about this extremely well written non fiction Canadian book from the very British Jen Campbell author poet and Booktuber extraordinaire Thank you JenUruhart s moving and informative book recounts her adjustment after her first child a daughter is born with albinism The book is part memoir part travelogue part journalistic investigation and part folkloric study I highly recommend it Uruhart seems to have inherited than a little of her mother s Jane Uruhart talent for fine writing

Emily Urquhart ✓ 1 SUMMARY

The story begins on St Stephen's Day 2010 in St John's Newfoundland when the author gives birth to a baby girl named Sadie Jane who has a shock of snow white hair News of the child's icy locks travels across the hospital and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet The maternity floor janitor however feels something is amiss Her eyes wide incredulous and panicky the janitor asks Is she an albino The idea is immediately dismissed but after three months of medical testing Sadie is diagnosed with albinism a rare genetic condition where pigment fails to form in the skin hair and eyes She is visually impaired and faces a lifetime avoiding the sun She will always have the otherworldly appearance that. I am fairly conflicted about this book and I have mostly myself to blame for that I did not really read the description before reuesting it and going mainly off the title of the book I expected the folklore part of this book to play a bigger role And I would have loved that book the one I imagined in my head I mean I am sure of it Using something as personal as the birth of one s child with albinism as a stepping stone to discuss larger themes of folklore and discrimination and mystery Yes please And the book did do that in part but not in any kind of depth This is especially sad considering that Emily Uruhart has academic experience in this area of research and it could have been glorious The parts where she talked about different myths were definitely my favourite but I think they could have been fleshed out and the conclusions drawn a little bit researched and less on the noseOn the other hand who am I to tell her how to write her story A story she obviously mostly wrote for herself and for her daughter to make sense of her now changed world It is heartwarming to read of all the things she does for her daughter and the book gives a clear sense of how much Emily and her husband adore their daughter and want just the best for her I do enjoy reading memoirs so I was also fine with her telling the story of her daughter s first few yearsWhere the book did lose me was in the weird structure Emily Uruhart does jump from topic to topic and does not tell the story chronologically either and sometimes that got a bit frustrating to read I also was not the biggest fan of the visit to Tanzania while I enjoyed reading about the myths and also the dangers faced by people with albinism in this country and learning about Tanzania Emily Uruhart s reasoning why she just absolutely had to leave her daughter behind to explore the connection she has with people in Tanzania as a mother to person with albinism was not convincing for meI received an arc of this book curtesy of NetGalley and Jacaranda Books in exchange for an honest review Thanks for that


10 thoughts on “Beyond the Pale

  1. says:

    I am fairly conflicted about this book and I have mostly myself to blame for that I did not really read the description before reuesting it an

  2. says:

    This has a massive personal connection for me Will chat about it in my August wrap up A wonderful read

  3. says:

    I'm giving this book a 35 rating which seems a little harsh in my head but I think it makes sense This is uite a short book and it is a non fiction all about Albinism folklore and the way Albinism is treated and seen worldwide When Emily the author had her baby Sadie she was born with Albinism This is a genetic disease that affects people wh

  4. says:

    In December 2010 the author’s first child Sadie was born with white hair It took weeks to confirm that Sadie had albinism a genetic condition associated with extreme light sensitivity and poor eyesight A Canadian folklorist Uruhart is well placed to trace the legends that have arisen about albinos through time

  5. says:

    A wonderful read exploring the many cultural beliefs and understandings surrounding albinism This is a non fiction book focusing on a subject in which Emily Uruhart has poured her heart and soul Having given birth to her daughter Sadie Emily uickly discovered there was something that set her daughter apart fro

  6. says:

    I have been dithering on posting these notes I read books and then I say what I think about them The notes are

  7. says:

    Given that I am Canadian it is ironic that I learned about this extremely well written non fiction Canadian book from the very British Jen Campbell author poet and Booktuber extraordinaire Thank you JenUruhart's moving and informative

  8. says:

    Read this review and on my blogI feel like this year is the happiest I've felt with my reading habits for the longest tim

  9. says:

    Albinism is a rare genetic condition where pigment fails to form in a person's skin hair and eyes Those with albinism suffer from poor vision and sensitivity to the sun often developing skin cancer When Emily Uruha

  10. says:

    Such an interesting book I'm glad I finally picked it up as I learned so much about albinism and how it affects people around the world I loved how Uruhart tied her research into folklore it really does show how fiction and myths can help us understand something that is very realI'm reviewing this book for the GritLIT blog tour so stay tuned